The Impact of Patient Organization on Health Care

I have been reading Steve Silberman’s excellent book Neurotribes, in which he discusses the ways families with autism organized to change the old paradigm of the “refrigerator mom,” the now-discredited idea that mothers caused autism by psychologically rejecting their babies in utero.  It seems to me that the challenges with professional acknowledgement of infestation by parasitic mites requires a similar level of patient organization.  I hope to find ways to help move that along.

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About Jane

Jane Ishka is a retired biotechnology professional. Her work wass typically read by FDA reviewers, who have approved everything from prostate cancer assays to an implantable glucose monitor based on her regulatory filings. She plays the steel drum and is a collage artist. She is now a full time author and workshop leader.